Development of a routine data collection process in community-based end of life care

Development of a routine data collection process in community-based end of life care

13 August, 2018

The role of GPs in end-of-life care is important and likely to increase as the population ages. Many GPs already deliver high quality palliative care. However, in Australia, we still know little about the quality, how and what palliative and end-of-life care is provided in the community setting, and there are no standardised processes for collecting information about this care.

The aim of this project is to test a newly developed questionnaire for feasibility and acceptability for routine data collection of end of life care in general practice.

Would you be willing to help us test our data collection method? This would involve filling in a short questionnaire for 10 of your patients who have died over the last couple of years, pre-defined data extraction from your medical software on these 10 patients and a short telephone interview to provide feedback on the process. Of course, your involvement in the project is voluntary, confidential and all information collected will be coded.

If you are interested in participating, please contact Jess Pendlebury via jess.pendlebury@emphn.org.au or Lisa Paulin via lisa.paulin@emphn.org.au.

Thank you for taking the time to consider participation in this study.